Living with a rare cancer can bring practical and financial pressures alongside the challenges of diagnosis and treatment. For some people, accessing specialist care can mean travelling significant distances, staying away from home or facing additional day-to-day costs.
We wanted to make the LMSR UK community aware of the Sophie Fitzpatrick Charitable Foundation for Rare Cancers, which provides financial support to eligible people living with rare cancers who are experiencing financial hardship.

The Foundation explains:
“The Sophie Fitzpatrick Charitable Foundation for Rare Cancers was set up to help ease the financial burden faced by people living with rare cancers, at what is often an extremely difficult time. We understand that a diagnosis can bring not only health challenges, but also significant financial pressure, particularly when treatment involves repeated journeys, time away from work and additional living costs.
We are here to offer practical support to those who have been diagnosed with a rare cancer, are experiencing financial hardship and are in receipt of a relevant benefit, such as PIP, ESA, Universal Credit or DLA. Our grants can help with the cost of transport, travel, sustenance and hotel accommodation, helping to ease some of the burden during what is often an overwhelming and deeply difficult time.”
If you are living with leiomyosarcoma and think you may be eligible for support, you can contact the Sophie Fitzpatrick Charitable Foundation for Rare Cancers at info@sfcfrc.com to discuss whether a grant may be available.
You can also find out more about the Foundation and its work on the Sophie Fitzpatrick Charitable Foundation for Rare Cancers website.
Please note that grants are provided independently by the Sophie Fitzpatrick Charitable Foundation for Rare Cancers and are subject to their eligibility criteria and the discretion of their Trustees.