Case Study: Kerry’s Story After Leiomyosarcoma
After being diagnosed with a rare form of leiomyosarcoma, life changed completely for Kerry Stokes.
Information and Support
Case Study: Gail Redpath – “I’m planning on being here as long as possible.”
After being diagnosed with advanced leiomyosarcoma in 2024 and given just months to live, Gail Redpath from Edinburgh has defied expectations. Now living with incurable leiomyosarcoma, she shares…
Financial Support for People Living with Rare Cancers
For people living with rare cancers, the cost of travelling for treatment or staying away from home can add extra pressure at an already difficult time. The Sophie…
Genomic testing is making headlines – but what does it mean for people with Leiomyosarcoma?
Recent headlines about the NHS expanding the use of genomic testing have brought personalised medicine into the spotlight.
Rare Cancer Bill passes into law
We are really pleased that the Rare Cancers Act 2026 officially became law on March 5, 2026, after receiving Royal Assent.
Promising results from early stage trial
An early stage American study published in The Lancet Oncology found that combining the oral drugs cabozantinib and temozolomide can slow the progression of advanced leiomyosarcoma (uterine and…