Financial Support for People Living with Rare Cancers
For people living with rare cancers, the cost of travelling for treatment or staying away from home can add extra pressure at an already difficult time. The Sophie…
Information and Support
Genomic testing is making headlines – but what does it mean for people with Leiomyosarcoma?
Recent headlines about the NHS expanding the use of genomic testing have brought personalised medicine into the spotlight.
Rare Cancer Bill passes into law
We are really pleased that the Rare Cancers Act 2026 officially became law on March 5, 2026, after receiving Royal Assent.
Promising results from early stage trial
An early stage American study published in The Lancet Oncology found that combining the oral drugs cabozantinib and temozolomide can slow the progression of advanced leiomyosarcoma (uterine and…